So when I started this blog my intentions were to go day by day and document things that way.
We’ll get to some of that, but the problem is that my memory of those first few days is especially hazy so I got mired in that and didn’t post anything. So let me just get you caught up to where I am now.
For starters, here’s what I posted on Facebook * on June 10, 2016:
So I walked into City of Hope yesterday and they were celebrating Cancer Survivor’s Day. They asked me “How many years?” I said “Only six months, do I still qualify?
Apparently I do.
YES! Today marks six months since, as Tania says, “Cancer came down with a bad case of Louie.”
The Dr. told us that I could expect to live 14 weeks without treatment and 18-24 months with treatment, but that “a handful” of his patients have gone five years or more. Well I promise you I’m joining that handful.
So I feel like I’m at a landmark, and I’m not just surviving, I’m kicking butt. Feeling good most days , MRIs don’t show anything very worrisome, and I start another course of chemo next week.
I’m not taking this lightly, I assure you. But I’m also confident that I’m a fighter with a great set of family and friends and a big God. Thank you all for your love, prayers, and support 💖💗👊
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So that’s six months. The visit to City of Hope was my first since I decided to switch. I didn’t really have any complaints at the hospital/cancer center where I was going, but I was listening to a webinar on brain tumors a while back and they used the phrase “standard of care.” it struck me when I heard that, do I want the “standard” of care or do I want cutting edge care at a research institution that’s known internationally?
I’m in Covina and COH’s main campus is in Duarte. About the same distance as where I was going. They also have some community locations that are closer, but it’s two buses and a train, so it’s doable.
Do you know that I can’t drive anymore? I’ll get back to that in the future. I promise.
I’ve had four MRIs total. My Dr. at COH was concerned enough to order a PET scan and follow-up MRI. She didn’t find anything hugely glaring but saw some differences. She said that it may be because they’re using a more powerful magnet or that my head was positioned differently. I think it’s because they put on the first Captain America for me and it’s the Marvel effect.
It’s a real thing. That I just made up.
So anyway I asked them to schedule everything on the same day and they obliged with a vengeance. My appointment is on July 6 starting with the PET scan at 6:45.
If anybody ever questions my commitment to fighting this thing…I’m taking two buses and a train to get to COH at 6 freaking 45 am.
Oh my goodness, I’d better stop otherwise I’ll never get this posted. Just a quick, self serving note before I go: . My medical expenses can pile up although I did get Obamacare in time. I am on California Disability and permanent Social Security Disability should start in July, but that’s what the old folks call a “fixed income.” If you feel like you can help financially, click on the GoFundMe link on the left of this page. If you can’t give $$$, I get it, believe me.
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* Re. Facebook, I would love to get new friends from this blog, but let’s do it this way: If I don’t know you yet, please first like the blog’s Facebook page. That way when I see your name requesting friendship, I’ll know you’re not a bot or somebody on a phishing trip.